Epizyme Launches In My Blood Online Resource To Empower People Living With Follicular Lymphoma To Play A Proactive Role In Treatment-Decision Making

Epizyme announced the launch of In My Blood, an online resource designed to empower people living with follicular lymphoma to partner with their healthcare providers and play a proactive role in treatment decision-making based on where they are in their follicular lymphoma journey.

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In My Blood offers follicular lymphoma patients, and their care partners, unique resources to aid them in taking a proactive role in their care as they navigate life with this typically incurable blood cancer. A central feature is My Follicular Lymphoma Coach, a first-of-its-kind quiz for follicular lymphoma patients. This brief questionnaire takes key information into consideration, including stage of disease, current symptoms, and lifestyle. Patients are then provided with a customized, downloadable guide to support them in having proactive, informed discussions with their healthcare providers. The personalized guide is designed for patients at any stage of their experience with follicular lymphoma and provides tools for them to engage proactively in their health, during both periods of treatment and remission.

“Over the years, through continued partnership with healthcare providers and patient advocates in the follicular lymphoma community, we’ve seen firsthand the importance of the healthcare provider-patient relationship when dealing with the complexities of navigating this typically incurable blood cancer over many years, sometimes even decades,” said Cheya Pope, Vice President, Corporate Affairs at Epizyme. “Knowing this relationship is paramount, we created In My Blood and My Follicular Lymphoma Coach, with input from the follicular lymphoma advocacy community, to fulfill a need for patients. We hope the resources provided will enable meaningful conversations between patients and healthcare providers to ultimately improve care.”

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As clear and proactive communication with healthcare providers is essential in order to detect signs of a potential relapse in follicular lymphoma, In My Blood also offers downloadable daily and weekly symptom trackers to support patients and care partners with disease monitoring. It also features stories and insights from individuals living with follicular lymphoma, which highlight how they have been able to proactively manage their disease and celebrates how they continue living life to the fullest. Additional resources, background information and links to related advocacy organization resources are also available.

“Upon learning you have follicular lymphoma the sheer volume of information, choices, and decisions you have to make can feel overwhelming. When I was newly diagnosed, I knew that I would need to advocate for myself to ensure that I received the best care and treatment based on my diagnosis and individual needs,” said Kendra Munger, In My Blood patient ambassador. “Now with In My Blood and My Follicular Lymphoma Coach, patients like me who are navigating life with follicular lymphoma can create a personalized guide with relevant information for where they are in their follicular lymphoma journey, along with important questions to ask their doctors as they work together to determine the best path forward.”

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